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Genetic Disorders

Spinal Muscular Atrophy Rare Diseases Inherited Diseases Sickle Cell Disease Neuromuscular Diseases Hereditary Angioedema Sanfilippo Syndrome Metabolic Disorders Mitochondrial Diseases Blood Disorders

Jesy Nelson Shares First Feeding in Special Chairs for Her Twins With SMA

She is pressing for universal newborn SMA checks following a limited rollout set for October 2026.

FDA Approves First Gene Therapy for Inherited Hearing Loss

CRISPR Enzyme ThermoCas9 Selectively Cuts Tumor DNA Using Methylation Cues

UK Brings Forward Newborn SMA Screening Pilot to October 2026

Jesy Nelson Shares Hospital Update on Twins’ SMA Care at Great Ormond Street

FDA Grants Accelerated Approval to Avlayah for Neurologic Manifestations of Hunter Syndrome

Scotland Launches UK’s First Newborn SMA Screening

Jesy Nelson Says Twins Fitted With Leg Splints, Intensifies Push for Newborn SMA Screening

Jesy Nelson Marks First Mother's Day, Rallies Support as SMA Screening Push Clears Debate Threshold

Jesy Nelson Shares Tender Video of Daughter as SMA Screening Campaign Gains Momentum

Andalusia Launches 109-Measure Rare Disease Plan as Fundraising Boosts Genomic Testing

Jesy Nelson’s Prime Video Doc Debuts, Detailing 2020 Crisis and Renewed Push for Newborn SMA Screening

Jesy Nelson Shares New Hospital Photo of Twins With SMA as Screening Push Intensifies

Jesy Nelson’s Prime Video Series Launches Feb. 13 With Follow-Up Special on SMA Push

Jesy Nelson Confirms Split From Zion Foster Following Twins’ SMA Diagnosis

Jesy Nelson Presses UK for Newborn SMA Screening After Twins' Diagnosis

Streeting Seeks Faster, Universal Newborn SMA Screening in England

Jesy Nelson and Zion Foster Reportedly End Engagement as They Focus on Co-Parenting

Experimental Vaccine NOUS-209 Shows Early Promise in Preventing Colon Cancer in Lynch Syndrome

Jesy Nelson’s Partner Condemns UK Delay on Newborn SMA Screening as Pressure Builds for £5 Test