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FDA Approves Zycubo, First U.S. Treatment for Menkes Disease

Early use cut mortality by nearly 80%, offering a targeted option for a fatal copper-transport disorder.

Overview

  • The FDA cleared the copper histidinate injection for children with the X-linked disorder, marking the first authorized therapy in the United States.
  • Zycubo (CUTX-101) is administered subcutaneously to bypass gastrointestinal absorption and raise blood copper levels.
  • Supporting data showed a significant survival benefit with early treatment, with median overall survival of 177.1 months versus 17.6 months in an untreated external control group.
  • Reported adverse reactions included infections, fever, hemorrhage, low blood pressure, respiratory failure, vomiting, diarrhea, fractures, elevated transaminases, anemia, fungal infections, and injection-site reactions.
  • Commercial terms grant Fortress/Cyprium tiered royalties and up to $129 million in milestones from Sentynl, a priority review voucher will be transferred to Cyprium, and Fortress shares rose more than 13% in premarket trading.