Health ❯ Healthcare ❯ Public Health

Rare Diseases

Drug Access Awareness Campaigns Genetic Testing Congenital Disorders Patient Advocacy Support Programs Disease Awareness Campaigns Spinal Muscular Atrophy Access to Care Drug Accessibility

6 ARTICLES

4mo ago

Brazil’s SUS Rolls Out Whole‑Exome Sequencing to Speed Rare‑Disease Diagnosis

Samples from new state collection points will go to INC and Fiocruz laboratories in Rio as the network scales toward nationwide capacity by the end of 2026.

3 ARTICLES

4mo ago

Brazil Treats First Infant in In‑Country Gene Therapy Trial for Severe Spinal Muscular Atrophy

6 ARTICLES

4mo ago

Mexican Experts Say 8 Million Live With Rare Diseases, Urge National Registry

6 ARTICLES

6mo ago

Lurie Children’s Launches Genetics and Rare Diseases Division With $11 Million Edwards Gift

10 ARTICLES

7mo ago

Felipe VI Urges EU to Close Innovation Gap at Jaume I Awards in Valencia

6 ARTICLES

10mo ago

Umbilical-Cord-Derived Cell Therapy Reduces Disease Activity in Children With Rare Skin Disorder

3 ARTICLES

last yr.

Alberta Signs $162M Deal to Expand Access to Rare Disease Drugs