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Rare Diseases

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Orlando Surgeons Perform First-of-Its-Kind Fetal Airway Procedure, Baby Survives

The novel cannula placement below a blocked airway offers a potential path for treating the rare, often fatal condition known as CHAOS.

Bayonne’s Baptiste Heguy Undergoes Antibody Treatment for Rare Neurological Syndrome

Mexican Experts Say 8 Million Live With Rare Diseases, Urge National Registry

Australian Influencer Erin Oudshoorn Announces Death of Daughter Lulu, 6, After Long Epilepsy Battle

Two-Year-Old With Kawasaki Disease Dies Suddenly at Home in Bristol

UK Mother Who Lost Husband and Son to Rare Alagille Syndrome Leads Awareness Push

Flu Leaves Four-Year-Old With Rare Brain Injury as Family Braces for Long Recovery

U.K. Mom’s Fast-Growing Arm Lump Was Liposarcoma, Now Monitored After Surgery and Radiotherapy

Swansea Mother Raises Funds to Seek Experimental Options After Son, 4, Is Diagnosed With Sanfilippo

Braveheart Bio Launches With $185 Million Series A to Advance HCM Drug

Taylor Swift Donates $100,000 to N.C. Toddler’s Cancer Fund After Viral Dance Video

Teen From Leith Diagnosed With Rare Lung Disease Linked to Pet Parrots Returns Home After Month in Hospital

Nine-Year-Old Walks With Frame After Transverse Myelitis as Family Launches £50,000 Neurokinex Fundraiser

10-Year-Old’s PANDAS Diagnosis Highlights NHS Guidance Gap as Family Turns to Private Care

Monica Seles Reveals Three-Year Battle With Myasthenia Gravis

14-Year-Old Delani Diekmeier to Begin Immunotherapy After Chemotherapy Fails

One Year After Ruptured AVM, Stroke Survivor Urges Scans for Persistent Headaches

Dual-Vector Gene Therapy Restores Sight in Usher Syndrome Patient; Trial Advances to Higher Doses

Infant’s Spasms Halted by Steroids as MRI Finds No Brain Abnormalities

Ultra-Rare 'Gwada Negative' Blood Type Becomes 48th Officially Recognized System