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Widow's 'Owain's Law' Reaches Parliament, Seeking Patient Consent Over Tumour Tissue Storage

She argues inconsistent NHS handling of tumour samples limits access to personalised brain cancer treatments.

Overview

  • MPs are set to examine the proposal in a Westminster Hall debate on Wednesday.
  • Ellie James says most of her late husband Owain’s 14cm glioblastoma sample was chemically fixed after surgery, leaving too little fresh-frozen tissue for a personalised vaccine.
  • She reports he received only three vaccine doses and believes more stored tissue could have enabled roughly 30.
  • The campaign calls for a legal right allowing patients to choose freezing and storage of tumour tissue immediately after operations.
  • Brain Tumour Research urged the Government to ensure fresh‑frozen storage is available nationwide to avoid shutting patients out of trials and innovative treatments.