Overview

• Brawn has lived with a mystery degenerative condition since age five that causes her joints to 'grind together' and left her reliant on a motorised wheelchair by age 14.
• She has endured chronic pain requiring metal rods in her spine at 16 and a hip replacement at 18 to manage severe spinal curvature and joint deterioration.
• Genetic testing likened her symptoms to rare disorders such as Schwartz-Jampel syndrome but failed to deliver an official diagnosis.
• Newly emerging problems with speech and swallowing highlight the progressive nature of her condition.
• She channels her chronic pain into painting, has self-published a children’s picture book and sells her artwork at craft fairs and online to a supportive TikTok following of over 12,000, while living independently with council-funded care.