Overview
- Access to Clinical Trials for Brain Tumours (ACT-BT) is funded for an initial eight-month pilot by The Brain Tumour Charity and hosted by the University of Leeds.
- The service aims to be operational by late spring 2026 with a simple online referral for consultants treating adults with primary brain tumours.
- A multidisciplinary panel of 10 UK experts will meet weekly to provide up-to-date, case-specific advice on study status and eligibility.
- ACT-BT will collaborate with international trial-matching platform myTomorrows and include patient and caregiver input through a brainstrust-led PPIE process.
- The launch follows reports of low trial participation and barriers to access, highlighted by Liz Paul after her daughter Natalie, 31, died in 2021 following difficulties finding suitable trials.