Overview
- Victoria Johnston collapsed at work in April 2022 and, after months of tests and initial suspicions of other conditions, received a full CIDP diagnosis in November 2024.
- She reported a relapse in June 2025 that worsened paralysis to roughly 75% in her right leg and 50% in her left, with episodes of severe pain.
- Clinicians planned intensive immunotherapy with a multi‑day induction and ongoing three‑weekly maintenance but now suspect a rarer CIDP variant that may require a different regimen.
- The illness and diagnostic delay forced the closure of the family cleaning business as her partner, David McReynolds, became a full‑time carer and their two children moved to homeschooling.
- Johnston has launched a TikTok account to share information on CIDP and says patients in the United States are typically started on treatment within six months.