Overview

• Connor Edwards, from Staffordshire, is bedridden and wheelchair-bound due to cranio-cervical instability, causing his skull to detach from his spine.
• The condition, exacerbated by Lyme disease and Ehlers-Danlos syndrome, leaves him suffering from joint dislocations, extreme fatigue, and neurological symptoms.
• His condition began five years ago after a tick bite during a mountain biking trip, with severe health complications emerging within months.
• Neurosurgeon Dr. Vicenc Gilete has called Connor’s case the most severe he has encountered, estimating the cost of surgery and related care at £100,000.
• Without the surgery, Connor faces the prospect of progressive deterioration and has stated he may consider assisted dying in Switzerland if funds cannot be raised.