Overview
- He collapsed at home on Jan. 8 and was pronounced dead despite more than an hour of resuscitation attempts.
- Diagnosed with Kawasaki disease at seven months, he underwent two IVIG treatments and infliximab but was left with large coronary aneurysms and lifelong anticoagulation.
- Specialist cardiology teams across the UK and abroad were consulted, and a heart transplant was considered but ruled out because his heart muscle functioned normally.
- The exact cause of death remains unknown as his case was sent to Southampton for a post-mortem that could take up to a year to finalize.
- His family has launched a GoFundMe and is urging parents to recognize Kawasaki symptoms, noting diagnosis can be delayed by reliance on a five-day fever rule.