Overview
- The municipality of l'Alcúdia de Crespins announced her death and conveyed condolences to the Garrigós‑Velasco family.
- A funeral is scheduled for Saturday, 3 January, in Brussels, where the family resides.
- Parents Pablo Garrigós and Almudena Velasco created the Cure KARS‑Laia Foundation to drive research into treatments for KARS-related disorders.
- A solidarity march in May 2025 in l'Alcúdia de Crespins raised more than €16,000 for a gene therapy project at the Instituto de Salud Carlos III.
- KARS syndrome is an ultra-rare, progressive genetic disease with roughly 50 documented cases worldwide and no curative therapy.