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Trump Launches Voluntary Health Data Exchange With Over 60 Industry Leaders

Under a voluntary, nonbinding pledge due in early 2026, the initiative sets FHIR-based criteria for secure record sharing, featuring patient-controlled apps for chronic disease management.

An American flag flies in front of the White House, Wednesday, July 23, 2025, in Washington. (AP Photo/Julia Demaree Nikhinson)
In this December 2020 photo, a respiratory therapist works on a computer in her office in Lamesa, Texas.
FILE - A doctor performs an ultrasound scan on a pregnant woman at a hospital in Chicago, Aug. 7, 2018. (AP Photo/Teresa Crawford, File)
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Overview

  • More than 60 organizations, from Google and Amazon to major hospital systems, committed at a White House event to adopt common interoperability standards by Q1 2026.
  • CMS unveiled voluntary FHIR-based interoperability criteria and outlined digital tools for diabetes and obesity management, AI symptom checkers and QR-code check-in apps.
  • The framework is nonbinding and provides no clear enforcement mechanism, leaving accountability for meeting deliverables by early 2026 undefined.
  • Privacy experts, including Georgetown’s Lawrence Gostin, cautioned that expanded sharing of sensitive health data without binding safeguards could enable misuse of patient information.
  • Separately, CMS announced upgrades to the Medicare Plan Finder, a National Provider Directory API, digital identity features on Medicare.gov and faster claims access via the Blue Button system.