Toulouse Artist Karine Brailly Granted Deep Sedation After ALS Struggle

The 56-year-old, suffering from advanced ALS, sought deep sedation under France's end-of-life laws after years of advocating for better care for patients like her.

• Karine Brailly, diagnosed with ALS in 2013, has received approval for deep sedation, a process that will render her unconscious until her death.
• Her decision follows years of battling the neurodegenerative disease, which has left her paralyzed and reliant on medical devices for survival.
• Brailly highlighted systemic failures in care for ALS patients, including challenges in accessing home care support and adequate resources for a dignified life.
• She launched advocacy efforts, including founding organizations to fund ALS research and raise awareness about the disease's impact on patients and families.
• Her case has reignited discussions about end-of-life care in France, with supporters emphasizing the need for dignity and autonomy for terminally ill patients.

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Libération La Croix Le Parisien