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Top Chef Winner Hosea Rosenberg Updates on Daughter Sophia’s Rare Bone Disorder

His Instagram post highlights how six-week infusions, daily medications and orthotic supports sustain Sophia’s resilience despite a lack of cure.

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Overview

  • On July 24, Season 5 Top Chef winner Hosea Rosenberg detailed his 8-year-old daughter Sophia’s medical journey with multicentric carpotarsal osteolysis on Instagram.
  • First diagnosed in April 2020 as one of roughly 30 confirmed MCTO cases worldwide, Sophia’s wrist and ankle bones continue to erode, leading to weakness and halted growth.
  • Her chronic kidney decline has emerged as a systemic complication alongside her progressive bone loss.
  • At Children’s Hospital Colorado, Sophia receives infusions every six weeks, takes multiple daily medications and relies on braces and splints for support.
  • Despite mobility challenges, she remains happy, attending school, dancing and enjoying time with friends and family in Colorado.