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Three Years In, France’s Endometriosis Plan Faces Funding Delays

Patient groups and clinicians call for expedited funding after a year-long gap in disbursements has stalled regional care networks

Overview

  • All French regions have pledged dedicated endometriosis care networks, with around ten now fully operational under the national plan.
  • The PEPR research programme has allocated approximately €11.3 million specifically for endometriosis projects, including the EPI-ENDO epidemiology study and scholarships for doctoral and postdoctoral researchers.
  • Ziwig’s saliva-based Endotest secured provisional coverage through the forfait innovation scheme, giving select patients early access pending larger clinical trial outcomes.
  • Program participants report that administrative hurdles have caused about a one-year delay in fund disbursement for key studies and regional initiatives.
  • Patient advocates and medical specialists are pressing the Health Ministry to fast-track procedures and increase budgets to achieve the strategy’s objectives.