Overview
- The 35-year-old journalist said she has acute myeloid leukemia with a rare Inversion 3 mutation first detected hours after giving birth in May 2024.
- Her treatment has included multiple rounds of chemotherapy, a sister-donor transplant followed by an unrelated donor transplant, and participation in CAR‑T and other clinical studies.
- She described severe complications during experimental care, including cytokine release syndrome, fluid in the lungs, significant weight loss, and an Epstein–Barr virus illness that damaged her kidneys.
- Although she entered remission at times, the cancer recurred, and one doctor told her the latest approach might keep her alive for about a year.
- She criticized her cousin, HHS Secretary Robert F. Kennedy Jr., over policies she says threaten research funding, noting her Columbia care team faced uncertainty when federal support was briefly withdrawn before being restored by the Trump administration.