Overview

• Olivia Taylor, 9, was diagnosed in January 2018 with an 8cm by 6cm optic nerve glioma and lost her sight about a month later, leaving her with roughly 1% vision.
• She underwent multiple rounds of chemotherapy and two major brain surgeries, with the tumour regrowing whenever treatment paused.
• Her parents chose a diagnostic biopsy last year, which resulted in partial facial paralysis that has improved but not fully resolved.
• Molecular results opened access to Trametinib and Dabrafenib, drugs now available on the NHS, and the family reports marked tumour shrinkage as she takes daily medication at home while immunosuppressed.
• Olivia attends a mainstream school using a cane and BrailleNote Touch and is fronting Children with Cancer UK’s Always By Your Side campaign for Childhood Cancer Awareness Month.