Overview

• The ALS law was approved unanimously last year to guarantee comprehensive care, with expected funding estimated at €184–€230 million.
• Patient groups and the Health Ministry acknowledge the direct grant to ConELA announced in July remains in trámite, and no aid has reached households.
• Families describe unaffordable 24/7 care needs, with ADELA estimating only 6% can cover the costs without public support.
• Yolanda Delgado, wife of patient Antonio Luque, says they have not received a euro and notes Luque filed the first lawsuit alleging non-compliance.
• Prominent patient Jordi Sabaté publicly criticized Prime Minister Pedro Sánchez on Friday, saying he feels mistreated and betrayed over the unmet commitments.