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Spain to Guarantee 24/7 Pediatric Palliative Care for Terminally Ill Children

Reports of gaps in continuous pediatric palliative care have prompted authorities to pledge new protocols for dignified death

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Instalaciones de la Unidad de Cuidados paliativos del Servicio de Medicina Interna del Complejo Hospitalario Universitario de Vigo (Chuvi).
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Berta, la hija de Margalida Llull, sufre de atrofia musculoespinal, una rara enfermedad

Overview

  • The Basque Health Department has announced plans to implement round-the-clock pediatric palliative care after reprimanding a specialist for out-of-hours home visits
  • Spain’s Ministry of Health committed to advancing formal guidelines on dignified death and family accompaniment in pediatric palliative settings
  • Cantabria still lacks a dedicated pediatric palliative care unit, leading Hospital Valdecilla pediatricians to provide end-of-hours support to terminally ill children
  • Hospital Valdecilla attends about six children per year through informal continuous care, with clinicians maintaining contact outside regular shifts
  • Medical societies PEDPAL and SECPAL are urging expansion of 24-hour pediatric palliative services nationwide beyond the current coverage in Catalonia, Madrid and Murcia