Overview
- Patients with advanced ELA and other complex irreversible conditions gain a new right to personalized 24‑hour support with a benefit of up to about €9,860 per month, financed 50% by the State and 50% by regions.
- The decree creates a new extreme dependency tier, Grado III+, to cover high‑complexity neurological care within Spain’s dependency system (SAAD).
- Social Rights Minister Pablo Bustinduy called an urgent Council Territorial meeting for Thursday to coordinate regional deployment and fund distribution, estimating rollout in weeks or a few months.
- Patient organizations welcome the funding yet decry a yearlong delay, citing hundreds of deaths during the wait, while opposition parties and some allies say they will examine the decree’s details before backing it in Congress.
- The Community of Madrid labels the €500 million insufficient and criticizes the lack of consultation, and associations note a separate €10 million Health Ministry ‘plan de choque’ has yet to reach beneficiaries.