Overview
- The decree guarantees personalized 24-hour care with a benefit of up to €10,000 per month for advanced ALS and other complex cases, funded 50% by the State and 50% by regional governments.
- It creates a new Grado III+ category within the dependency system to cover extreme cases requiring continuous, high-complexity care.
- Social Rights Minister Pablo Bustinduy said the system should be operational in weeks or very few months, with regional coordination beginning Thursday.
- Patient associations cautiously welcome the move but denounce a year-long delay, cite hundreds to over 1,000 deaths since the law’s approval, and say a previously announced €10 million subsidy has not reached them.
- The Madrid regional government calls the €500 million insufficient and a cost shift to regions, while the PP, Vox and some allies say they will read the decree’s fine print before deciding their vote.