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Sara Bennett, Who Documented Life With ALS, Announces Her Death at 39

Her final Instagram message expressed gratitude, reflecting carefully planned end‑of‑life choices.

Overview

  • Bennett died on Jan. 12 at age 39 after nearly three years with ALS, with her death announced Tuesday on her Instagram account in a caption she wrote.
  • In her message, she said she was not in pain or tired and expressed thanks for her life, noting she had finished her list.
  • The mother of two shifted her account to The Ananda Pivot after her 2023 diagnosis and chronicled her progression for more than 100,000 followers.
  • She prepared legacy materials for her sons, including scrapbooks and milestone letters, and planned a green burial as part of her palliative approach.
  • As her abilities declined, she used eye‑gaze technology to communicate and, in a recent essay, urged people to push for ALS research and funding.