Overview

• The 'Ridefiniamo l'inclusione' exhibition at Palazzo Merulana in Rome opened on May 28 with 10 artists’ illustrations based on insights from focus groups involving over 30 rare-disease patients, caregivers and family members
• Participants guided by psychologist Jacopo Casiraghi explored inclusion as a dynamic process integrating acceptance, diversity, participation and equal opportunities
• The initiative emphasizes reciprocal inclusion by encouraging individuals to share their experiences as a pathway to being heard and supported
• Organizers highlighted the need for local healthcare networks to ensure rare-disease patients, particularly the elderly, receive ongoing community-based care
• Supported by Sobi and led by Omar with partner patient associations, the project earned praise from Disability Minister Alessandra Locatelli for fostering a more just health landscape