Robert Paulson, Longtime ALS Survivor and Disability Rights Advocate, Dies at 86

Robert Paulson lived with ALS for over 30 years and published a memoir about his experience.
He advocated for a positive perspective on disability and built a public profile as the face of ALS.
Though unable to move, he communicated using technology operated by eye movements.
He emphasized resilience when faced with adversity and inspired people, especially children.
Interventions like a tracheotomy and ventilator enabled his unusually long survival with ALS.