Overview
- In a first-person essay for The Cut published Dec. 29, Gayheart writes that she secured round-the-clock nursing after repeated denials from Dane’s insurer.
- She says the coverage was approved after two appeals, the week is organized into 21 nursing shifts, and she fills uncovered hours or enlists friends when needed.
- Gayheart recounts that Dane’s symptoms began about a year before diagnosis, starting with weakness in his right hand and difficulty using utensils.
- She and Dane told their daughters about a week after she learned of the diagnosis and brought in therapists to help the teens process anticipatory grief.
- Though separated since 2017, Gayheart withdrew her 2018 divorce filing in March 2025, and Dane has continued selective work and advocacy, including a November appearance on NBC’s Brilliant Minds portraying an ALS patient.