Overview
- Gayheart writes that Dane now has around-the-clock nurses, describing a week split into 21 shifts and noting she fills uncovered hours herself or enlists friends.
- She says an insurance representative repeatedly denied requests for continuous home care, and that approval finally came after two formal appeals.
- Gayheart recalls first learning of the diagnosis by phone from a neurologist’s office and says they told their daughters about a week later, with guidance from mental-health professionals.
- Dane disclosed ALS publicly in April after earlier hand weakness; he reported losing function in his right arm by June and progressive weakness in his left.
- Though long separated and living in different homes, Gayheart describes a nonromantic, familial partnership as they spend more time together while Dane continues limited advocacy and ALS-focused acting work, including a November appearance on NBC’s Brilliant Minds.