Overview
- Gayheart writes that Dane now has round-the-clock nurses after two insurance denials were overturned on appeal, with the week split into 21 shifts that she sometimes fills herself.
- She recounts Dane calling from a San Francisco neurologist’s office to share the diagnosis, saying both of them began weeping during the call.
- The estranged spouses live about 12 minutes apart and organize frequent meals and visits to maximize Dane’s time with their daughters, Billie, 15, and Georgia, 14.
- They told their children about a week after Gayheart learned the news, and the family relies on therapists and direct access to Dane’s doctor to support the teens.
- Dane disclosed ALS publicly in April 2025, has lost function in his right arm with weakening in his left, and continues advocacy work and selective roles related to his experience.