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Parents Demand Mandatory Reporting After Son’s Death from Brain-Eating Amoeba

The first confirmed Naegleria fowleri infection in South Carolina since 2016 has prompted calls for mandated reporting, including tougher water safety measures

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Clarence and Ebony Carr hug as they talk about the death of their son from a brain-eating amoeba he got at a popular South Carolina lake on Tuesday, July 29, 2025, in Columbia, S.C.. (AP Photo/Jeffrey Collins)

Overview

  • The South Carolina Department of Public Health has officially attributed 12-year-old Jaysen Carr’s death on July 18 to a Naegleria fowleri infection contracted at Lake Murray.
  • Clarence and Ebony Carr held a news conference urging state and local authorities to issue public advisories, require routine water testing and enforce mandatory reporting of amoeba cases.
  • The CDC recommends holding the nose shut, using nose clips or keeping the head above water during freshwater activities to reduce the risk of primary amebic meningoencephalitis.
  • Experts warn that rising water temperatures driven by climate change may expand the geographic range of the amoeba, yet standardized environmental monitoring remains unreliable.
  • South Carolina currently has no laws mandating public notification, lake closures or water testing after confirmed Naegleria fowleri cases, fueling broader policy review.