Nine-Year-Old Walks With Frame After Transverse Myelitis as Family Launches £50,000 Neurokinex Fundraiser

Her progress followed a free week of activity-based therapy at Neurokinex.

Overview

Ivy Amos, 9, from Bath, was diagnosed with transverse myelitis in February 2024 after a seizure and meningitis, leaving her paralysed from the neck down.
She spent nine to ten weeks in intensive care with ventilation and a tracheostomy, then completed five weeks of specialist spinal rehabilitation at Stoke Mandeville.
After discharge, community NHS physiotherapy was limited to roughly weekly sessions that tapered to three- to six-month reviews, according to her family.
Ivy now attends two one-hour Neurokinex sessions each week, can walk with a frame, and has returned to Year 5 at school.
Her family is promoting the #TopBinsSmallWins social challenge to raise £50,000 for the Neurokinex Charitable Trust to fund free rehabilitation weeks for others.