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Most Autistic Adults Over 40 in the UK Are Undiagnosed, Review Finds

A King’s College London review links widespread underdiagnosis in older adults to poorer health outcomes.

Overview

  • The narrative review, published in the Annual Review of Developmental Psychology by King’s College London’s Institute of Psychiatry, Psychology & Neuroscience, re-analysed 2018 UK healthcare records.
  • It estimates that 89% of autistic people aged 40–59 and 97% of those aged 60 and over do not have a formal diagnosis.
  • Collated evidence shows higher rates of physical and mental health conditions, sixfold greater suicidal ideation or self-harm among those with high autistic traits, fourfold higher early-onset dementia diagnoses, and an average life expectancy of 75 versus 81.
  • The authors describe barriers to appropriate care in older adulthood, including communication differences, sensory sensitivities, uncertain service pathways, continuity-of-care concerns, and limited clinician understanding.
  • The review finds only 0.4% of autism research since 1980 focuses on midlife and older age, and clinicians are sharing practical guidance on later-life signs and workplace adjustments.