Overview
- The 17-year-old said she has lived with the congenital condition since childhood and first noticed significant symptoms around age 13 to 14.
- She explained that her bones have hollow areas and are more fragile, citing a femur fracture in 2022 when she was 14.
- She reported pain mainly on her right side, including her upper arm, and said she avoids sports and focuses on physiotherapy to protect her bones.
- Coverage notes McCune-Albright syndrome is very rare, involves fibrous dysplasia that weakens bone, is genetically caused but typically not inherited, and can also feature early puberty and café-au-lait skin spots.
- She urged followers to value their health, saying the experience has taught her to appreciate small things in everyday life.