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2d ago

Matteo Materazzi Fundraiser Collects €25k in First Hour for Custom ALS Therapy

Launched to fund a $1.5 million antisense therapy at Columbia University, the campaign has drawn €25 000 in its first hour alongside donations from prominent football figures.

Matteo Materazzi lotta con la SLA: “Muove solo le mani”, l’appello e la raccolta fondi
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Overview

  • The GoFundMe appeal opened on July 31 and secured over €25 000 from more than 120 contributors in its first hour.
  • Organizers aim to raise $1.5 million to develop a tailored antisense oligonucleotide treatment under Dr. Shneider at Columbia University.
  • Previous ASO therapies have worked against SOD1 and FUS ALS mutations, but Materazzi’s TDP-43 variant poses added scientific hurdles.
  • Early backers include football community figures Gaia Lucariello, Edoardo Crnjar and Arianna Rapaccioni.
  • Since his September 2024 diagnosis, the 49-year-old agent has rapidly lost mobility and faces respiratory decline due to the aggressive progression of his ALS.