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Jordi Sabaté Rebukes Sánchez as Patients Report No Funds From Spain's ALS Law

An emergency €10 million grant approved in July remains in processing, covering only a fraction of cases.

Overview

  • The law entered into force on October 31, 2024, yet no broad allocation has been enacted, with needs estimated between €184 million and €230 million.
  • Patient groups say families have not received promised aid, and adELA reports only about 6% can afford the cost of 24/7 professional care.
  • ConELA estimated that by June more than 600 people had died since the law’s approval, and associations cite roughly three deaths per day.
  • The July royal decree earmarks €10 million for ConELA to support advanced cases needing continuous specialized care such as ventilation and assisted feeding, but the subsidy remains “en trámite.”
  • Political pressure escalated as activist Jordi Sabaté accused Pedro Sánchez of failing patients, echoing opposition claims that households have received no money.