Overview
- Nelson posted an Instagram clip of herself laughing and playing with one of her twins days after revealing their SMA Type 1 diagnoses.
- She appeared on This Morning to urge the NHS to add a heel‑prick test for spinal muscular atrophy to routine newborn screening.
- Nelson said SMA Type 1 can be fatal in infancy without prompt care and that her daughters began treatment quickly because timing is critical.
- Parent advocate Sophie Cooke said babies in the UK are not currently screened for SMA and called for nationwide testing.
- Cooke described her son Sid’s diagnosis at four months and his one‑off Zolgensma gene therapy in 2021, noting encouraging progress alongside ongoing support needs.