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Jesy Nelson Says Her Twin Daughters Have SMA Type 1

Both eight-month-olds are receiving urgent care at Great Ormond Street following a time-sensitive diagnosis.

Overview

  • Doctors told Nelson the girls will likely be disabled and probably never walk after assessments at Great Ormond Street Hospital.
  • Nelson said Ocean Jade and Story Monroe recently received rapid, potentially life‑saving treatment, though there is no guaranteed cure.
  • Concerns arose months after their premature birth at 31 weeks following twin‑to‑twin transfusion syndrome, despite early reassurances about delayed milestones.
  • The singer described becoming a full‑time carer, learning to use breathing machines and managing frequent hospital visits.
  • Nelson used her announcement to urge earlier detection, calling for SMA to be identified through newborn heel‑prick screening.