Overview
- In an emotional Instagram video on Sunday, the former Little Mix singer said eight-month-old Ocean Jade and Story Monroe were diagnosed after months of assessments.
- Specialists at Great Ormond Street Hospital told the family the girls will likely be disabled, may never walk, and may not regain neck strength.
- Nelson said both babies received urgent treatment and credited it with keeping them alive, stressing that time is critical for effectiveness.
- She described becoming a full-time carer, learning to use breathing machines and attending frequent hospital appointments since the diagnosis.
- Sharing the news to raise awareness, Nelson highlighted that UK newborn screening does not routinely test for SMA and encouraged parents to seek prompt evaluation if concerned.