Overview
- Nelson says 8-month-old Ocean Jade and Story have SMA Type 1 and have begun treatment at Great Ormond Street Hospital.
- New Instagram clips show a laughing baby and a visible feeding tube, highlighting home routines that include night-time breathing support and cough-assist machines.
- She has launched a petition to add SMA to the NHS heel-prick test, citing a reported 36p cost and noting adoption in more than 40 countries including the United States.
- Scotland plans to start SMA screening in the spring and the UK National Screening Committee is reassessing its guidance, with Health Secretary Wes Streeting calling Nelson right to push for faster diagnosis.
- This Morning presenter Cat Deeley drew criticism from disability advocates over saying treatment could allow “normal lives,” as parents praised Nelson’s awareness drive and shared hopeful experiences.