Inquest Reveals Struggle of ME Patient Who Refused Hospital Care

Maeve Boothby-O’Neill's battle with myalgic encephalomyelitis highlighted the challenges faced by patients and medical professionals

Maeve Boothby-O’Neill, 27, suffered from ME since age 13 and was treated at Royal Devon and Exeter Hospital
Doctors urged her to stay in hospital, but she chose to be discharged, citing a preference for home care.
Her condition included severe malnutrition, inability to chew or sit up, and extreme sensitivity to stimuli.
Medical professionals noted the difficulty of respecting her wishes while ensuring adequate care.
The inquest continues, examining the final months of her life and the medical decisions made.