Overview

• Iara Mantiñán passed away in early July 2025 in Madrid after undergoing an experimental therapy at Hospital Clínico San Carlos.
• She navigated nearly ten years of living with ultra-rare extraosseous myxoid chondrosarcoma that metastasized to her lungs and brain.
• As founding president of the Asociación de Sarcomas de Galicia (Asarga) since 2020, she spearheaded publications of patient testimonies and training events to support sarcoma sufferers.
• She highlighted obstacles in Spain’s decentralized health system that complicate clinical trials, unified patient records and access to treatments for rare cancer patients.
• Her family and Asarga commemorated her legacy of dogged patient advocacy and urged continued investment in research for ultra-rare cancers.