Overview
- Souness appeared on ITV's Good Morning Britain alongside 13-year-old Jasmine Ritchie, who lives with EB, and her mother, Anna.
- He called the rare genetic condition “as bad as it gets,” recounting a pre-show moment that left him close to tears as Jasmine stayed composed.
- Often known as “butterfly skin,” EB leaves skin so fragile that routine activities can cause severe blistering and pain, requiring frequent dressings and strong pain relief.
- A vice-president of the charity DEBRA, Souness has helped raise millions, including more than £1.5 million from a 2023 English Channel swim.
- He urged increased government backing for treatment and research, with DEBRA planning to lobby ministers on behalf of affected families.