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10h ago

Government to Approve Decree Tuesday to Fund and Activate Spain’s ALS Law

After a year of stalled implementation, patient groups have escalated legal pressure over unmet ALS support.

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Isabel Roig con su marido, Jesús, con ELA desde el 2002
Un cuidador atiene de a un enfermo

Overview

  • The decree slated for the Council of Ministers will authorize a specific credit with a substantial budget to make the law’s aids operational.
  • The Ministry of Social Rights, led by Pablo Bustinduy, crafted the criteria after repeated meetings with patients, with ConELA set to receive a briefing the day after approval.
  • Parliament passed the ALS law in October 2024, yet associations say promised support has not reached patients despite a one‑year adaptation window.
  • The Health Ministry’s €10 million interim plan for the most severe cases was announced over the summer, but patient groups report the funds have not fully materialized.
  • Associations estimate overall funding needs around €200 million, including roughly €184,000 per year for the most severe patients, as regions deliver care through the SAAD with central transfers.