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German Immunotherapy Boosts Teen’s Fight Against Rare Cancer, Family Faces £300,000 Shortfall

Limited NHS options led the Holsons to seek bespoke immunotherapy in Germany at a cost that exceeds their remaining funds by £300,000.

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Overview

  • Jamie Holson was diagnosed with stage four alveolar rhabdomyosarcoma in June 2023, a rare soft tissue cancer affecting about 31 people in England each year.
  • Two courses of chemotherapy produced remissions in December 2023 and February 2025 but the disease relapsed in May 2024 and again in April 2025.
  • After NHS treatment options were exhausted, the family launched a GoFundMe campaign in September 2024 and raised over £300,000 for specialized care abroad.
  • Since June 2025 Jamie has been undergoing genomic profiling and personalized immunotherapy at a German clinic and is showing positive responses.
  • Most of the initial funds have been spent and the Holsons need an additional £300,000 to cover bespoke vaccine doses (€5,000–€20,000 each) and nightly clinic fees (€1,300).