Overview
- Jordan and Cian Adams crossed the finish line in Merrion Square, Dublin, on Thursday after running a marathon in each Irish county on consecutive days.
- The brothers say genetic tests show they carry a MAPT variant that gives them a very high chance of developing frontotemporal dementia in mid-life and they ran in memory of 12 relatives lost to the disease.
- The campaign has raised about €1.7 million for the Alzheimer Society of Ireland and The FTD Foundation, with large crowds and endorsements from national charities.
- Jordan began the effort by running the London Marathon on April 26 while carrying a 25kg fridge, and the brothers used the tour to collect personal stories about gaps in care and support.
- The brothers say the diagnosis has already shaped family planning and finances, and they plan to press for clearer services and specific spending of donations to fund research and welfare for affected families.