Overview
- A friend flagged a persistent head tilt in photos, prompting renewed medical checks beyond an initial viral or ear infection assessment.
- A CT scan at Bedford Hospital revealed an extensive brain tumour, with pathology on November 22 confirming the rare ETMR diagnosis.
- Surgeons at Addenbrooke’s removed about 80% of the mass in a 12-hour operation, and doctors warned time was limited without further resection.
- Following sepsis and ICU care, Alder Hey surgeons used intra-operative MRI to remove more tumour, enabling chemotherapy, with a stem cell harvest and shunt completed afterward.
- Capri began the first of six intensive chemotherapy cycles on December 20 and remains in hospital as her parents fundraise, with £34,000 raised toward a £50,000 goal.