Overview

• Senator Gilbert Bouchet, who is suffering from ALS, personally addressed the Senate to advocate for better patient care.
• The proposed reform aims to reduce the average 5.9-month wait for disability compensation, which is critical for rapidly progressing diseases like ALS.
• The legislation introduces a procedure to expedite support for severe, fast-progressing conditions, with a specific list of eligible diseases to be determined by decree.
• An age barrier that limited benefits to those under 60 will be lifted for ALS patients, allowing them to receive more advantageous support regardless of age.
• The reform, which could cost €30 million annually, has garnered government backing, with financial support promised if it passes in Parliament.