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France’s 39th Téléthon Goes Live With 30-Hour Appeal for Rare‑Disease Research

Fresh clinical gains in AFM‑funded gene therapies are driving a push for donations to scale costly final‑phase trials.

Overview

  • The France Télévisions marathon began at 18:45 on Friday and runs non‑stop for 30 hours, with singer Santa serving as patron alongside a lineup of flagship presenters.
  • Organizers seek to match or top the long‑standing €106 million record from 2006 after a definitive total of roughly €96–97 million in 2024.
  • More than 16,000 community events are scheduled nationwide, complemented by a 30‑hour gaming livestream on Twitch broadcasting from Évry‑Courcouronnes.
  • Donations are accepted by phone at 3637 and online at telethon.fr, with appeals highlighting both research and direct patient support.
  • Généthon reports encouraging results for its Duchenne therapy GNT0004, with no serious adverse effects and a larger, supervised final‑phase trial now underway.