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Four-year-old’s gruelling treatment for rare eye tumours and lymphoma nears completion

His family is fundraising for a Disney World holiday following his final chemotherapy session this July

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Overview

  • In August 2022, after his mother spotted a white glow in his left eye, Felix was diagnosed with bilateral retinoblastoma at Frimley Park Hospital and urgently referred to Royal London Hospital.
  • On the eve of scheduled surgery, an MRI at Great Ormond Street Hospital uncovered a third tumour in Felix’s pineal gland and leptomeningeal disease, prompting eight months of intensive chemotherapy from September 2022.
  • A post-treatment scan in June 2023 revealed a liver mass later confirmed as lymphoma, leading to two more years of chemotherapy at Southampton Hospital.
  • His treatment included a 40-day high-dose session, a stem cell transplant and a sepsis scare from an infected port, leaving him with permanent hearing loss that requires a lifelong hearing aid.
  • As he prepares to finish chemotherapy in July 2025, friends have launched a fundraising campaign to send him and his sister to Disney World and bring some normality back to their childhood.