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FDA Adds Boxed Warning to Elevidys, Narrows Use to Ambulatory Patients 4 and Older

The move follows two adolescent deaths from acute liver failure after the gene therapy.

Overview

  • The updated U.S. label highlights a risk of potentially fatal liver failure for the Duchenne muscular dystrophy treatment.
  • Use is now restricted to walking patients aged four or older with a confirmed DMD gene mutation.
  • The FDA advises weekly liver-function testing for the first three months after infusion.
  • Regulators acted after two non-ambulatory teens died of acute liver failure, and the agency halted shipments in July during a safety review.
  • Sarepta shares rose following the label change, while Europe’s CHMP has recommended against approving the therapy.