Overview
- A broad coalition at the ADSCV’s VIII Congreso in Alicante called for immediate budget allocation to implement the unanimously approved 2024 ELA law.
- Speakers demanded financing for 24/7 home care, expedited recognition of disability for ELA, and fiscal and economic relief for patients and caregivers.
- ADSCV president Carlos Fornes said more than 1,000 people with ELA died in the last year for lack of care despite legal protections.
- Medical leaders, including ConELA’s Fernando Martín and neurologist Carmina Díaz, said ALS requires continuous, specialized care not covered by general dependency frameworks.
- Regional voices, including PPCV health spokesperson Nieves Martínez, blamed the absence of national budgets and underfunding in the Valencian Community for the law’s faltering first year.