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Essex Teen With Usher Syndrome Pushes ‘Visual Wish List,’ Plans 2026 Trips

Her family is prioritizing visual experiences given the uncertain timing of future sight loss.

Overview

  • Audrey Tyrrell, 13, was diagnosed two years ago with Usher syndrome, which combines congenital hearing loss with progressive retinal degeneration.
  • In 2025 she checked off Stonehenge, a Coldplay concert and a Cornish pasty in Cornwall, adding to earlier highlights like Taylor Swift’s Eras Tour, the Eiffel Tower and Legoland.
  • Her vision is described by her family as steady, yet the pace and onset of sight loss remain unpredictable.
  • The wish list is expected to take 10 to 20 years to complete and includes the Statue of Liberty and the Northern Lights.
  • Plans for 2026 include trips to Rome and the Vatican City and a visit to Cephalonia, following a diagnosis journey that began with newborn hearing aids and genetic findings confirmed in March 2023.